tag:blogger.com,1999:blog-8946749431399096254.post8645142863383386734..comments2016-12-10T17:26:53.718-05:00Comments on Meredith Lewis: We have a diagnosisLauraLewhttp://www.blogger.com/profile/13975526339999145117noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-8946749431399096254.post-7433738307905756502015-10-04T16:24:02.181-04:002015-10-04T16:24:02.181-04:00I am a general pediatrician and I just recently di...I am a general pediatrician and I just recently diagnosed a 15 year old. She had the diagnosis of autism spectrum disorder for most of her life. Would those of you think it would benefit the family to see Dr. Khwaja? She is high functioning no seizures but mentally challenged.little sisterhttps://www.blogger.com/profile/12300974454763698813noreply@blogger.comtag:blogger.com,1999:blog-8946749431399096254.post-32046784443891740712014-06-21T16:48:46.137-04:002014-06-21T16:48:46.137-04:00My daughter was just diagnosed with this as well. ...My daughter was just diagnosed with this as well. Please share anything and everything.Heather LO-JOhttps://www.blogger.com/profile/14604570175151881448noreply@blogger.comtag:blogger.com,1999:blog-8946749431399096254.post-46496907539772729102013-08-21T00:38:26.759-04:002013-08-21T00:38:26.759-04:00My son Adlai (20 months) was diagnosed around 12 m...My son Adlai (20 months) was diagnosed around 12 months. I have found lots of support and information from a facebook group called "Fox g1- congential variant of retts" which is connected to the recently established "International Fox g1 Foundation"-a non-profit working to fundraise for research. Exciting! Please join us! The group is closed, so you'll just have to email the admin (Jenn).Aleahttps://www.blogger.com/profile/16349573788492332347noreply@blogger.comtag:blogger.com,1999:blog-8946749431399096254.post-36723895375647630722012-04-21T14:16:42.936-04:002012-04-21T14:16:42.936-04:00Hi Laura,
I was searching on the internet for more...Hi Laura,<br />I was searching on the internet for more information about Fox G1 syndrome.<br />I came on your blog.<br />I'm sorry for the bad English, but i'm from Belgium.<br />I have a little daughter, Pauline, she is now 21 months old.<br />When i look at your picture's it's like seeing my own girl.<br />When i read the information you describe about Meredith it's like the picture is complete for me.<br />At the moment there is research for the fox g1 diagnose for my daughter. Whe are waiting and waiting for an answer.<br />First we tought about Rett Syndrome, but they already said us she doesn't have Rett.<br />Do you know what funny is?<br />You have the same name like me and my husband's name is Gregory!<br />Will you make contact?<br />My e-mail: laura_de_vos8@hotmail.com<br />Greetings LauraLaura DVhttps://www.blogger.com/profile/02702666830763112220noreply@blogger.comtag:blogger.com,1999:blog-8946749431399096254.post-64010912731628650212011-09-01T18:40:53.848-04:002011-09-01T18:40:53.848-04:00Congrats on the diagnosis. My friends all think D...Congrats on the diagnosis. My friends all think Dr. Khwaja is a hottie. LOL! He's also in our list of specialist. :D I'm so glad for you guys! :DHeidihttps://www.blogger.com/profile/09800405065596559414noreply@blogger.comtag:blogger.com,1999:blog-8946749431399096254.post-6294077815999968362011-08-30T13:00:09.455-04:002011-08-30T13:00:09.455-04:00Laura I'm so happy to hear that you and Gregg ...Laura I'm so happy to hear that you and Gregg found an answer! This is such good news. At least that weight is lifted off your shoulders and you can move forward. I'm going to give you a big hug when I see you next!!Andrea Kowalskihttps://www.blogger.com/profile/07091006913944805791noreply@blogger.comtag:blogger.com,1999:blog-8946749431399096254.post-17185075668335422452011-08-24T20:10:36.207-04:002011-08-24T20:10:36.207-04:00oh laura. i have the chills reading this. isnt d...oh laura. i have the chills reading this. isnt dr kwhaja awesome? I was able to see him at the rett conference in boston this past may. if there is ANYHTING I can do to help you please let me know. I know its a little different than Rett syndrome, but Im here for you nonetheless. please call me or email me anytime. let me know if you want my number. big hugs. xxooEricahttps://www.blogger.com/profile/17851509745425295624noreply@blogger.com