Today we attended our first official Rett Syndrome Event - the Blue Sky Event at Harvard Medical in Boston. Greg is in China for work but Meredith and I went and we brought Grandma too! It was a great day and we had the opportunity to meet many other Massachusetts Rett families. Dr. Khwaja was there as well as several of the researchers working on finding a cure. Each of the children climbed the stairs to symbolize their strength and perseverance. After the kids climbed, Dr. Khwaja and the researchers climbed too. It was an amazing day. The second picture is Meredith and I with my marathon buddy Jeanne and her beautiful daughter Charlotte.
you just plain rock.
ReplyDelete