More great stuff happening with Rett research.
http://www.uab.edu/news/latest/item/1850-uab-researchers-seek-to-reverse-rett-syndrome-in-children
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About Me
- LauraLew
- I thought starting a blog might be a good way to chronicle our adventures with Meredith and keep people informed. For those that don’t know, Meredith was born June 13th, 2008. She is developmentally delayed, undiagnosed (Edit- received diagnosis 8/19/11 - Atypical Rett Syndrome due to FOXG1 Mutation), and microcephalic. She has a seizure disorder, low muscle tone and Cortical Vision Impairment (CVI). She has made beautiful progress and continues to meet her “inchstones”, though she’s going at it on her own timeline. She is a happy girl who loves to be around people. She laughs a ton and cracks us up every single day. She loves sounds, squeaks, and music and is very vocal! Being parents of a special needs child has taught us so much and challenged us in ways we never could have imagined. We have learned to take none of our gifts for granted and to nourish every unique quality our daughter possesses. She has been an inspiration to many and while it has been challenging to not know what the future holds, we are reminded daily of how amazing Meredith is. Our goal is to never put any limits on what she may be able to do. Meredith will surprise us all!
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